A day in the life
This a diary of things that William goes through every day:
I get up early every morning for a two hour physiotherapy session with the help of my carer George Pothas. He also helps me with washing, dressing and bladder management amongst other stuff. I couldn't manage without George.
If I'm well enough, I then go to school but unfortunately I'll be off school for at least another three months now. I miss my friends.
Throughout the day I have to stand up regularly with the help of two people. I don't have to use the callipers anymore although someone needs to brace my knees. Being seated for most of the time, I have a large pressure sore on my sacrum, so every two hours I have to have pressure area care. My mum and brother also help me with more physiotherapy and passive movements to keep my joints mobile. My fingers are still numb and I have a problem with broken elbow, which makes everything more difficult. I also get strange sweating sensations which I've been told are also due to the spinal injury. Frequent urinary tract infections are a problem for me as well. Because I am numb from the chest down I can't feel my bowels so I also need bowel management.
Twice a week I have another physiotherapy session in the evening with George. The rest of the time my mum and brother help me with the physio.
Once all the gruelling physio is over I'm usually quite tired but I do like to find time for my hobbies. I enjoy pottery and it also helps with my fingers, but I have a real passion for playing the drums.
Later my mum and brother carry me up to bed. I need to be turned every two hours so I don't get pressure sores. And that's my day done.
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